$5,000 #RAREis Scholarship Fund for Students with Rare Diseases in the USA 2023

Written by catherine.caoile on March 22, 2022

4 min read

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Scholarship details

  • Area of study

  • Country of the Scholarship

    United States
  • Scholarship Valid Until (Year)

  • Type of scholarship

    Bachelor's scholarship
  • Scholarship amount given

    $3000 - $5000
  • Type of scholarship administrator

    Private sponsor
  • Mode of scholarship (Online/Offline)

  • Applier's country

    United States
  • Expenses covered

    Tuition fees
  • Scholarship Contact Details

    [email protected]. 507-931-0799  

For the fall semester of 2022, the Every Life Foundation offers a scholarship intended for the students who are experiencing a rare condition disease which makes it a hindrance to completing their higher education. To provide opportunities and support the students in fulfilling their academic and career goals, the foundation launched an annual scholarship to further their undergraduate and graduate degrees for the academic year of 2022-2023.

#RAREis Scholarship

EveryLife Foundation understands the situation of every person living with a rare disease. Many unique challenges were being experienced by the person who has a rare condition, this includes visiting the doctors often, continues treatments, hospitalizations, and risk exposures, while their duration of life improves and goes well as day goes by.

Individuals with rare conditions are also struggling to meet their goals in life, that is why the EveryLife Foundation was encouraged to create a scholarship only intended for the individuals who have the conditions. The scholarship aims to enrich their lives and provide support for their educational goals.

With the help and support of the Horizon Therapeutics PLC, the foundation can grant a total of 53 individuals amounting to a total value of $5,000 each for the fall semester of 2022.

Scholarship Summary 

  • Academic Year: 2022-2023
  • Applicants Nationality: USA
  • Degree Level: Undergraduate and Graduate
  • Field: Any chosen field of the students
  • Scholarship Awards: $5,000
  • Duration: NA
  • Renewable: No, but the students can re-apply for the next scholarship opening date
  • Offered Annually: Yes
  • Scholarship Country: United States
  • Study Commencement: Fall of 2022

Scholarship Provider: EveryLife Foundation 

About the Provider

The EveryLife Foundation is a non-profit organization that is dedicated to empowering every individual who has a rare disease to provide support as they continue with their everyday life. The foundation is committed to engaging the uncommon infection patient local area to advocate for effective, science-driven regulation and strategy that progresses the fair advancement of and admittance to lifesaving judgments, medicines, and fixes. The foundation doesn’t represent patients but they give the preparation, education, assets, and chances to make their voices heard. By initiating the patient backer, they can change arrangements and save lives.

Founded in 2009 by Dr. Emil Kakkis, renowned genetics who has dedicated his life to helping improve and for the development of drug treatments for individuals with rare diseases. The treatment has helped save the lives of thousands of individuals.

EveryLife Foundation is committed to providing help and support with transparency and ethical standards.

Scholarship Eligibility

The scholarship applicants must be able to meet the following eligibility of the scholarship.

  • Must be age 17 and older and a resident of the United States.
  • Diagnosed with a rare condition by the physician to have a rare medical condition regardless of the treatment status.
  • Must be able to provide a Diagnosis Verification provided by their physician.
  • Currently admitted or enrolled in a part-time or full-time program in an undergraduate or graduate degree at any accredited university or institution with 2 or 4 years college, university, or vocational school for the 2022 fall semester.
  • There is no age limit for the application, veterans, no gender specification, non-traditional students are also encouraged to apply for the scholarship.
  • Must be able to demonstrate good academic records

Note: If you aren’t sure of whether you have a rare disease you can refer to the National Institution of Health.

Scholarship Application Process

To apply for the scholarship, applicants are required to apply at an online portal application created for the scholarship. Students have to create their accounts for the application process and upload all the necessary documents that will be able to support their scholarship application.

Required Documents 

To better support your scholarship application, it is important to attach the documents to demonstrate your eligibility for the scholarship award.

  • Transcript of records, unofficial or online transcript of records is required that the applicant’s name, university name, merits, and credit hours on each course and term must be displayed.
  • Completed Diagnose Verification Form from your physician.
  • Essay


Applicants are required to submit an essay consisting of 350-400 words outlining the question “How can education and your career goal can help you to become one of the advocates for the Rare-Disease Community.”

Scholarship Course

Applicants may be able to choose the field of study they prepare, for the 2022 applciation cycle the applicants are required to plan be admitted to a part-time or full-time undergraduate or graduate degree.

Selection of Awardees

  • The selection for the awardees will be based on the essay, participation and leadership skills in the community and at the university, work-related experience, and academic performance.
  • Students’ financial needs will also be considered by the foundation.
  • All incomplete applications will not be considered by the scholarship committee.
  • Academic performance will be evaluated.

Scholarship Awards 

The EveryLife Foundation will be selecting 53 deserving students and they will receive a total value of $5,000. The award is not renewable, however, students can also reapply annually for the scholarship program if they meet the eligibility criteria of the scholarship.

Scholarship Deadline 

The scholarship application opens March 18, 2022, and will be close by April 22, 2022. Applicants must be able to complete and submit their application and required documents before the deadline. Late applciation will not be considered.

All required documents must be submitted electronically, in case you are having trouble uploading the documents, applicants can contact the scholarship provider to better assist them on their application process.

Notification for the Award 

Successful applicants will be notified by June of 2022, keep in mind that not all applicants will be awarded the scholarship. Unsuccessful students can re-apply for the next scholarship opening date.

Scholarship Payment 

The scholarship payment will be sent to the beneficiary of the awards individually.

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